Upcoming Support Group Meetings:
Monday, April 24, 7pm - Dr. Elena Frid guest speaker*
Monday, May 22, 7pm
Monday, June 26, 7pm
Monday, July 24, 7pm
Time: 7:00p - 9:00p (Note new time. Formerly 6:30p)
Location: Phillips Ambulatory Care Center of Beth Israel
10 Union Square East btw 14th & 15th St.
2nd floor Conference Center, Room 2
* Dr. Elena Frid, a Lyme Literate Neurologist, will be speaking at the April 24th meeting. Dr. Frid will be speaking about Neurological Lyme and the use of IVIG for Neuro Lyme. She will be open to answering questions. Dr. Frid is "one of the most experienced and unique Lyme doctors in the field, due to her background in Autoimmune Neurology, with heavy focus on diagnostic methodology, clinical expertise in neurology and psychiatry, and treatment therapy encompassing western and eastern medicine.
"Board Certified by American Board of Neurology and Psychiatry in Neurology and Clinical Neurophysiology. Member of the American Academy of Neurology (AAN). She is a voting member of the International Lyme and Associated Diseases Society (ILADS), Medical Adviser to Project Lyme organization and member of the Independent Physicians of New York (IDNY).
"Upon request from families, Dr. Frid frequently collaborates on complex pediatric cases of Neuro Lyme disease with Dr. Charles Ray Jones, a world leading pediatric Lyme disease specialist with over 40 year career experience in dealing with children with Lyme disease and other Tick Borne Illnesses."
Meetings are on the 4th Monday of each month.
(Note the 4th Monday is not always the last Monday of the month.)
Please note: People often come to the group seeking info on what has worked for others. While this can be helpful, it is important to note that group members are not medical professionals. They speak only from their own experience, and any treatments mentioned in meetings cannot be taken as medical advice.
Oct. 10-11, 2014 Lyme protest at IDSA conference in Philadelphia
Sept. 17, 2014 Silent Vigil at NY Times
May 10, 2013 Worldwide Lyme Awareness Rally
The international Lyme disease community rallied in support of patients in 29 countries around the world and 25 states in the US for the first time.
> NYC Rally Video > Photos > Photos from Worldwide Rallies
Sign Petition: Remove outdated IDSA Guidelines from NGC!
ACTIVISM - Watch videos:
LymeRights protest at Rep. Pallone's office
> Patients' messages to Rep. Pallone
Resources (free brochures)
Lyme Disease: The Basics -
plain-language introduction to tick-borne diseases
ILADS: What every Primary Care Physician should know about Lyme Disease
ILADS: Psychiatric Lyme Disease
ILADS & Burrascano Treatment
Lyme Disease Association
International Lyme & Associated Diseases Society (ILADS)
Sign the Petition
Protest the inhumane IDSA Lyme treatment guidelines